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CEDAR Midwest Project Papers

These are the peer-reviewed papers that CEDAR Midwest has generated. Papers describe our community-based research network, findings from our longitudinal cohort study of health and participation for people aging with long-term physical disability, and the development and implementation of an intervention to promote participation for people aging with long-term physical disability. A plain-language summary is provided along with information and a link to each paper.

Consistency of participation over time among persons aging with physical disability as measured by a tool designed for use among community-based organizations

Describes a set of activity domain measures to assess community participation and change in participation over time for people aging with long-term physical disability, and results of these measures from our longitudinal cohort study.

Full Paper

Citation: Putnam, M., Morgan, K., Hollingsworth, H., Heeb, R., Chen, S.-W., & Stark, S. L. (2023) Consistency of participation over time among persons aging with physical disability as measured by a tool designed for use among community-based organizations. Disability and Health Journal. Advance online publication. 101519.


Social participation of adults aging with long-term physical disabilities: A cross-sectional study investigating the role of transportation mode and urban vs. rural living

An analysis of data from our longitudinal cohort study related to the impact of the built environment and other socioenvironmental factors on social participation for people aging with long-term physical disabilities.

Summary     Full Paper

Citation: Desai, R. H., Hollingsworth, H., Stark, S., Putnam, M., Eyler, A., Wehmeier, A., & Morgan, K. (2023). Social participation of adults aging with long-term physical disabilities: A cross-sectional analysis investigating the role of transportation mode and urban vs rural living. Disability and Health Journal, 16(4), 101503.


The role of the built environment in the community participation of adults aging with long-term physical disabilities: A scoping review

A scoping review of the literature on the role of built environments in community participation for adults aging with long-term physical disabilities.

Summary     Full Paper

Citation: Heeb Desai, R., Hamlin, E., Eyler, A., Putnam, M., Stark, S. Doering, M., Morgan, K. (2023). The role of the built environment in the community participation of adults aging with long-term physical disabilities: A scoping review. Journal of Aging and Environment. Advance online publication. doi: 10.1080/26892618.2023.2175099


Exploring the perspectives of adults aging with long-term physical disabilities on physical activity: A qualitative study

A qualitative analysis of interviews with people aging with long-term physical disability about their experiences with and perspectives on physical activity.

Summary     Full Paper

Citation: Heeb Desai, R., Kiserow, R., Mullings, A., Smith, M., Tucker, S., Eyler, A., Stark, S., Morgan, K. (2023). Exploring the perspectives of adults aging with long-term physical disabilities on physical activity: A qualitative study. American Journal of Health Promotion, 37(5), 654-663.


A protocol for Removing Environmental Barriers to Independent Living (REBIL): An adapted evidence-based occupational therapy intervention

Describes the development of REBIL, an intervention to reduce barriers to participation and prevent falls for people aging with long-term physical disabilities, and the protocol for a randomized controlled trial to test the intervention.

Summary     Full Paper

Citation: Chen, S.-W., Somerville, E., Devine, M., Stark, S. (2022). A protocol for removing environmental barriers to independent living (REBIL): An adapted evidence-based occupational therapy intervention to increase community participation for individuals aging with long-term physical disabilities. British Journal of Occupational Therapy, 86(5), 349-358.


COVID-19 Factors associated with depressive symptoms in people aging with long-term physical disabilities

Describes factors (including loneliness, anxiety and financial stress) associated with depressive symptoms for participants of our longitudinal cohort study during the onset of the COVID-19 pandemic.

Summary      Full Paper

Citation: Chen, S.-W., Rice, S., Storey, K., Keglovits, M., Devine, M., Yan, Y., Stark, S., (2023). COVID-19: Factors associated with depressive symptoms in people aging with long-term physical disabilities. OTJR: Occupational Therapy Journal of Research, 43(2), 194-201.


Aging with disability symptoms and ability to participate in, and satisfaction with, social participation among persons aged 45-64

Describes relationships among symptoms (pain, fatigue and depression) and social participation from Years 1 and 3 of our longitudinal cohort study.

Summary     Full Paper

Citation: Putnam, M., Morgan, K., Heeb, R., Yan, Y., Chen, S.-W., Stark, S. L. (2022). Aging with disability symptoms and ability to participate in, and satisfaction with, social participation among persons aged 45–64. Healthcare, 10(5), 903.


Aging with long-term physical disability: Cohort analysis of survey sample in the U.S.

Describes the social, demographic, health and participation data from Year 1 of our longitudinal cohort study.

Summary      Full Paper

Citation: Morgan, K. A., Putnam, M., Espin-Tello, S. M., Keglovits, M., Campbell, M., Yan, Y., Wehmeier, A., & Stark, S. Aging with long-term physical disability: Cohort analysis of survey sample in the U.S. [version 1: peer review: 1 approved]. F1000Research, 11, 68.


Sociodemographic differences in respondent preferences for survey formats: Sampling bias and potential threats to external validity

Describes an analysis of data from Year 2 of our longitudinal cohort study. This analysis explores relationships between participant characteristics and their choice of phone or web-based survey.

Summary       Full Paper

Citation: Chen, S.-W., Keglovits, M., Devine, M., Stark, S. Sociodemographic differences in respondent preferences for survey formats: Sampling bias and potential threats to external validity. (2022). Archives of Rehabilitation Research and Clinical Translation, 4(1), 1001.


Factors influencing participation among adults aging with long-term physical disability

Presents qualitative data from Year 1 of our longitudinal cohort study. People aging with long-term physical disabilities responded to open-ended questions about their health and participation.

Summary      Full Paper

Citation: Heeb, R., Putnam, M., Keglovits, M., Weber, C., Campbell, M., Stark, S., & Morgan, K. Factors influencing participation among adults aging with long-term physical disability. (2021). Disability and Health Journal, 15(1), 101169


Development and implementation of a community-based research network

Describes the development of our community-based research network connecting researchers and community organizations to explore the participation needs of people who are aging with disabilities.

Summary      Full Paper

Citation: Minor, B. C., Dashner, J., Espin-Tello, S. M., Bollinger, R., Keglovits, M., Stowe, J., Campbell, M., & Stark, S. L. (2020). Development and implementation of a community-based research network. Journal of Clinical and Translational Science, 1-24.


Examination of community participation of adults with disabilities: Comparing age and disability onset

Explores community participation between adults 50 years and younger compared to those over age 50, as well as between persons with early (age 40 years or younger) or later (over age 40) onset of disability.

Full Paper

Citation: Dashner, J., Espin-Tello, S. M., Snyder, M., Hollingsworth, H., Keglovits, M., Campbell, M. L., Putnam, M., & Stark, S. Examination of community participation of adults with disabilities: Comparing age and disability onset. Journal of Aging and Health, 31(10_suppl): 169s-194s.