Project 2: Participation-Focused Longitudinal Cohort Study of Individuals Aging with a Long-Term Physical Disability

What is this project about?

People aging with long-term physical disabilities (PAwLTPD) begin to show health-related signs of aging at an earlier age than the general population. PAwLTPD are often excluded from research, so there are few studies exploring changes in participation as adults with disabilities age. There is also limited research exploring how personal and environmental factors affect community participation for PAwLTPD.

Project Goals

  1. Look at how community participation changes for PAwLTPD over three years.
  2. Look at how receiving long-term supportive services affects how much PAwLTPD participate in their communities.

What does this study involve?

We are recruiting 550 participants to complete three 30-minute surveys over three years. Surveys will be collected online or over the phone.

Participants include adults between the ages of 45 and 65 who have had a physical disability for at least five years. Survey participants receive a $16 gift card for each survey they complete, for a total of up to $48.

Status

We have completed the first year of our cohort study and are beginning to contact participants for the Year 2 follow-up survey.