Project 3: Adapt an Existing, Effective Evidence-Based Intervention and Evaluate its Efficacy for PAwLTPD in Community Settings

What is this project about?

Evidence-based programs to reduce environmental barriers are unproven among PAwLTPD who may have changing home modification and community participation needs. There is evidence to show that building self-management skills enables people with disabilities to successfully identify and resolve barriers to participation. Learning self-management strategies from a peer who has successfully dealt with similar experiences is an effective self-management approach.

Project Goals

  1. Figure out what changes to make to an evidence-based program focused on removing environmental barriers and self-management to be able to use it in the community. Conduct a series of focus groups with PAwLTPD and community long-term support service providers. Look at the results from Project 2 to see what else we should add to the intervention.
  2. Adapt the program for PAwLTPD. Try out the program with 3-5 PAwLTPD participants. Make more changes to the program based on their results.

What does this study involve?

We will conduct a series of focus groups made up of LTSS providers, and PAwLTPD from the St. Louis MADRN member organizations. The focus groups will help to adapt the evidence-based Community Participation Transition after Stroke (COMPASS) intervention for PAwLTPD. We will be recruiting approximately 30 participants for the focus groups.

Participants will include adults between the ages of 45-65 who have had a physical disability for at least five years and who self-report difficulty with 2 or more daily activities. Agency participants will include employees of the St. Louis MADRN member organizations who would influence delivery of the program. Focus group participants will receive a $50 gift card.

Status:  In development. We will be recruiting participants soon! If you are interested in participating, please contact us.