Project 3: Adapt an Existing, Effective, Evidence-Based Intervention and Evaluate its Efficacy for People Aging with Long-Term Physical Disabilities in Community Settings

What is this project about?

Evidence-based programs to reduce environmental barriers are unproven among people aging with long-term physical disabilities (PAwLTPD) who may have changing home modification and community participation needs. There is evidence to show that building self-management skills enables people with disabilities to successfully identify and resolve barriers to participation. Learning self-management strategies from a peer who has successfully dealt with similar experiences is an effective self-management approach.

Project Goals

  1. Figure out what changes to make to an evidence-based program focused on self-management and removing environmental barriers to be able to use it with PAwLTD. Conduct a series of focus groups with PAwLTPD and community long-term support service providers. Look at the results from Project 2 to see what else we should add to the intervention.
  2. Adapt the program for PAwLTPD. Try out the program with 3-5 PAwLTPD participants. Make more changes to the program based on their results.

What does this study involve?

We are conducting a series of focus groups made up of long-term support service providers and PAwLTPD from the member organizations of the community-based research network formed in Project 1. The focus groups will help to adapt the evidence-based Community Participation Transition after Stroke (COMPASS) intervention for PAwLTPD. We are recruiting approximately 30 participants for the focus groups.

Community participants include adults between the ages of 45 and 65 who have had a physical disability for at least five years and who self-report difficulty with two or more daily activities. Agency participants include employees of member organizations in the community-based research network (MADRN) who would influence delivery of the program. Focus group participants will receive a $50 gift card.

Status

We have completed the focus groups for Aim 1 and are in the process of using focus group findings and results of the first year of our cohort study to adapt the intervention for PAwLTPD.